I can’t believe that ten years have now past since I had the pump put in and a lot has changed so I think it’s time for an update.
Well I’m now 21 and I cannot begin to tell you what a massive impact the Baclofen pump has had on both myself and my families’ life; I no longer suffer such intense spasms which now means I am more relaxed which has massively improved my quality life. As a result of this certain aspects of my care such as hoisting and dressing are now so much easier for my parents due to the fact I am more flexible.
Being more relaxed has given me the opportunity to undertake new challenges such as sitting a GCSE in environmental science alongside that I also undertook 3 courses with the Open University which I’m very proud of. As well as all of that I currently volunteer at my local hospital where I get to work with a wide variation of teams and departments, I have also been very lucky to be able to go to Australia which before I had the pump I could not have considered due to the long flight and the pain it would have caused me, but thanks to not being stiff I found the flight almost pain free.
I hope that by reading this diary it has given you an insight into what it’s like to have the pump and to come into hospital.
With very best wishes,