I can’t believe that ten years have now past since I had the pump put in and a lot has changed so I think it’s time for an update.
Well I’m now 21 and I cannot begin to tell you what a massive impact the Baclofen pump has had on both myself and my families’ life; I no longer suffer such intense spasms which now means I am more relaxed which has massively improved my quality life. As a result of this certain aspects of my care such as hoisting and dressing are now so much easier for my parents due to the fact I am more flexible.
Being more relaxed has given me the opportunity to undertake new challenges such as sitting a GCSE in environmental science alongside that I also undertook 3 courses with the Open University which I’m very proud of. As well as all of that I currently volunteer at my local hospital where I get to work with a wide variation of teams and departments, I have also been very lucky to be able to go to Australia which before I had the pump I could not have considered due to the long flight and the pain it would have caused me, but thanks to not being stiff I found the flight almost pain free.
I hope that by reading this diary it has given you an insight into what it’s like to have the pump and to come into hospital.
With very best wishes,
Glen White
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